Accommodation For Person with Downs Syndrome with Dementia

Thank you so much Christine for taking the time to write to us.

It seems that all the people in charge of his home want him to go because he may be becoming a little harder to look after. They are saying cos he wakes at night he may fall down stairs though he never has. He has problems with incontinence, but he has diverticulitis, which is very diet controlled and they dont follow that. We agree it is very unpleasant to deal with this but as a carer doesn’t training explain that this can be an issue with dementia. I am sure he is not the only one!

We believe he should be closer monitored by his GP re drugs, and an independant carer to take him out sometimes or be there to look after him, if only a hour or 3 a day would make a big difference.

We have to date contacted 11 homes but none suitable, affordable or where we could let him live. With my mums age this is going to come to me to decide. I am disabled myself physically, so it is important we get something sorted out.

Please look at previous replies re the professionals, i.e. the social worker he hasn’t had one for 15 months, has had 1 for 3 months that has met him twice. We were called to a meeting with several social sevices, professional we hadnt met.

If you would like to speak to me or my mum I will happily give u my tel number (Please personal message me).

Thank you again. It means a lot to know we have someone to speak to.