Assessment measures available for practitioners and researchers (apologies for cross posting).
In our programmes of research we have developed a number of assessments that are designed to capture valid and reliable information about behaviour and affect in people with intellectual disability and\or autism. Many of these assessments were developed because measures that were available and in use were not appropriate for people with more severe intellectual disability who were non-verbal or minimally verbal. Consequently, the behaviour and affect of people with these characteristics was not assessed accurately or was neglected.
The assessments we have developed cover behaviours such as self-injury and aggression, stereotyped and repetitive behaviour, overactivity, impulsivity, overeating and food related problems and also constructs such as sociability, interest and pleasure, and mood. We have produced a manual that includes the measures (with some translated into eleven languages), data for specific samples, scoring protocols, information on psychometric properties and description of the purpose of the measures. The assessments have been used in approximately 80 peer reviewed, published research papers.
The manual and the assessments are now available online as a PDF for download and use in research and clinical settings. There is no charge for accessing and using the manual and assessments as we want them to be freely available and used without constraint. We do ask that people register before downloading. The reason for this is that we need to demonstrate impact and use of the assessments and this enables us to do so. We also ask that people do not give the manual and assessments to others, even within the same organisation, but instead ask them to register and download. We hope you understand why we need to use this process to demonstrate impact.
The manual and assessments can be accessed via this registration page
https://www.findresources.co.uk/professionals/login
We hope you find them useful and we welcome feedback and comments. Please forward this email to networks in our field and anyone in any country who might make use of the assessments.
On behalf of all members of the Cerebra Centre for Neurodevelopmental Disorders.
Best wishes
Chris
Prof Chris Oliver
Cerebra Centre for Neurodevelopmental Disorders
University of Birmingham