Unique, The Rare Chromosome Disorder Support Group, have been collecting information to help families affected by rare chromosome disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding.
The guides are available here: http://www.rarechromo.org/html/FamilyGuides.asp
Unique does its best to keep abreast of changing information and to review its published guides as needed. New guides about other practical topics, and updates to existing guides, will be coming on stream all the time, so please do pop back regularly to see what’s new. If you would like to see a new topic added to this range of guides, please let us know by emailing craig@rarechromo.org with your ideas.