Parent carer experience of transition - invitation to take part in my Doctoral research project

PMLD Network
1

Hello, my name is Jillian Pawlyn, and I am a doctoral researcher with the Faculty of Wellbeing, Education and Language Studies (WELS) at The Open University.

I am carrying out research with parent carers of young people with profound and multiple learning disabilities/profound intellectual and multiple disabilities (PMLD/PIMD) in England to explore their experiences during their child’s transition from child to adult health and social care services.

I am being supervised by Professor Elizabeth Tilley and Dr Wendy Turner, Faculty of Wellbeing, Education and Language Studies (WELS) at The Open University.
My research will give insight into the parent carer’s transition experience to reduce the knowledge gap surrounding this life experience.

If you are a parent carers of young adults (18 to 25 years) with PMLD/PIMD in England. and the transition occurred between 2014 and 2024; please consider taking part in my study.

Participant Flyer Parent carer experience of Transition.pdf (84.7 KB)

Please view my video on YouTube to learn more about my research project.

The Open University Research Ethics Committee has reviewed my research study and given a favourable opinion.

If you are interested in taking part or want more information, please email jillian.pawlyn1@open.ac.uk

2

Hello,
Are you a parent of a young person with profound and multiple learning disabilities/profound intellectual and multiple disabilities (PMLD/PIMD)?

I would like to hear about your experiences during your child’s transition from child to adult health and social care services.

Please read my Participant Flyer Parent carer experience of Transition.pdf (84.7 KB)
and view my video on YouTube to learn more about my research project.

Please contact me at jillian.pawlyn1@open.ac.uk if you want more information or want to participate.

Best wishes, Jillian