i do hope thing have changed for the better by now ,one thing to remember this was at the very start of a massive change, the year 2000 year of change beought hope and love back into the lives of our most vulnerable long live fare access to care that turned health and social care on its head.
the old systems were still in place this being block booking, in Bristol block booking for care from care organization were made on a five to seven year in advanced contracts so when this massive change hit them health and social care went into turmoil ,something that was not on their radar the contracts were so sloppy if health and social care needed to changed terms of the contracts hefty penalty were incur guess H & S C were in a no win place all that could be done was blag it out, for as long as possible but for family and adults being supported in the community it was impossible for any change to happen .
to give a quick answer to questions
how did i learn.
sadly, i had to complain to my M P demanding she ask a question in parliament why i was caring 7/24 with help she was so concerned it was her that gave me of the copy white paper
developing a care plan .
this was one of the more fun things i did understanding my sisters quirky ways made me realise we were not too different in our mannerisms and what upset us.
what worked well
simple just having choice
what was difficult
having to deal with social worker that had a bios towards family carers many were openly aggressive
what help did we get
very very little
a small group of family carers that just wanted to do the best Thay could came together we called ourselves inclusion south west
between us we did research familiarised ourselves with most of the care policy from the valuing people white paper used this to get social workers to listen we came to the attention of university of the west of England became an integral part of student training for serval years
as you can imagen being in a place where you could dictate to the person paying you, must have been a dream come true
total lack of understanding
not having any radar
comes to mind i could talk for a long time about the ups and downs at the beginning of fare access to care period it is in parts a grim story the one thing that keep us carers going was the knowledge we all believed in what we do
for me the struggle is over my sister has now passed away only wish my parent could have seen her enjoying life like i did
however, if you are down my way and would like to meet up i would suggest put a good day aside, i will have much to share hopefully have an old carer colleague to share her story .