Thanks for replies. I know that technically the company was correct in refusing to let us see their paperwork. However, I felt this was taking things just too far. Although we have had to have MCA 2005 assessments and best interests meetings for other things we have never before had a provider who refused to let us see paperwork. Funnily enough they did allow us to see his Hospital Passport and Covid Grabsheet because it wasn’t their document – it was a document from our Health Authority. They had filled this in without consulting us at all and when I did see it I found that each document had my son’s date of birth slightly wrong. I told them and they amended it. I needed to see all the other documents because the service was being re-tendered and I wanted to see what they were going to hand over to the new Provider. It took ages to get the BI meeting when it was agreed we could see the docs. (We don’t have health & welfare deputyship because I know it is hard to obtain and we had never before encountered a situation where we thought we would need it.) The company originally said they would give the new Provider information a different format. Then they said they would not give the new provider any written information – they would just give them a verbal handover. The contracts department said they had to handover written information. So they finally handed it over to Social Services who passed it on to me and the new Provider. When I saw it I was shocked. There was loads of stuff missing. What was there was all out of date. My son’s d.o.b. was given as the same one I had corrected in the hospital passport. There were all sorts of other errors including saying that he had a benign brain tumour (which he has NOT got)!
I complained to the Company and detailed exactly what was wrong. They wrote back and said everything was fine, and said if I wasn’t happy I could go to the Ombudsman. I have written back and said I would give them a second chance to admit their failures because if I went to an Ombudsman or a Community Care Lawyer and was successful it would ruin their reputation.
In the meantime I am having to give the new company all the right information! They haven’t taken over yet (another long story which I have no time to go into but due to a misunderstanding with the last Provider) and my son has had to have an interim service from an agency. The new company are consulting us fully and are happily sharing their documents with us even though they know my son would be unable to consent to this.
I have formed my own conclusion about why the Company said we couldn’t see the documents – and I think it has very little to do with GDPR!