I am wondering if any of you out there could kindly give me some ideas (and I am always up for innovative ideas) of how to set up future plans for my daughter please. My daughter is 31 years old and was diagnosed with severe and complex learning disabilities, large and fine motor difficulties and is on the autistic spectrum.
Housing: My daughter lives in the same village she grew up in and where I also live. She has ‘community presence’ and is well known by local people. Her home is owned by her Disabled Person’s Trust and only my daughter lives there with 24hr support paid by her Personal Budget. This has proven to work brilliantly for her which is evidenced by her building confidence, and autonomy.
Support: Having a personalised team of support, employed directly, really works for her. Two of the team have worked with my daughter for over 10 years and the others not long behind. My daughter needs consistency and having different support coming/going would increase her anxiety, and it takes time for support to get to know and understand her. So, using an agency would not work as they have a high turnover of staff, however much they promise consistency. Currently I am the Responsible Employer and manage the team. We have a team leader in place who manages day to day employment matters.
I have Joint and Several Deputyship with an organisation that provides a Deputyship service, for my daughter’s Finances, so they are set up and ready to take over when I am incapacitated. However, they will not take over the role as Responsible Employer and they only use agencies.
I have sole Deputyship for Health and Welfare which allows me greater strength at Social Care annual reviews. There is no family close by and young enough to take over this role (I say young enough as in to grow older with my daughter)
As you can see there are holes that need a solution:
a. Responsible Employer needed so my daughter’s personalised support may continue when I am incapacitated. Who would Social Care regard as a Responsible Employer (my reckoning is that it would have to be someone with financial responsibility)
b. Someone to regularly visit to check on my daughter’s welfare. Ideally once a month! This person needs to get to know my daughter and be consistent ie. same person visits.
If anyone has any ideas or know of a similar situation where this has been resolved please advise. I would be extremely grateful, thank you